Sunday, October 20, 2013

Spina Bifida and Pain

People with SB are at risk for chronic pain Pain can be felt in many ways. Sometimes (like if you smash your thumb), you know exactly where the pain started. That happens to everyone. Other times, it just hurts everywhere. As people with SB age, they often have pain associated with degenerative conditions that affect the spine, joints, or muscles. In SB, commonly seen conditions are: arthritis, osteoporosis, carpal tunnel syndrome, and tethered cord syndrome. Back pain is common in adults, and can be very debilitating. 
There are many causes of pain, and the each type determines how long it will last.
Pain is generally classified in two categories: acute or chronic. People with SB can have either type of pain, or even both at the same time.
What is Acute pain?
Acute pain is the kind that comes on very quickly, may be moderate or severe, and the cause or location of the pain can usually be identified. Acute pain can be controlled when the cause of the pain is identified. It can be treated, and it goes away within hours, days, or weeks.
What is chronic pain?
Chronic pain is a long term condition; and it lasts for weeks, months, or years. It comes on slowly over a period of time, the cause(s) may be difficult to pinpoint; and it can be very difficult to manage. Chronic pain affects every aspect of a person’s life; and the longer it persists, the more difficult it is to get under control. Therefore, it should not be ignored. Chronic pain is very serious; and should be treated as a disease in itself.
Can I prevent chronic pain?
Sometimes chronic pain can be prevented if the condition that causes pain is diagnosed and treated early. Acute pain occurs suddenly. It happens in relation to a specific tissue injury, and is often treatable. Acute pain can be severe, but doesn't last long. People who have this type of pain usually know why they hurt. That is very different from chronic pain, which is often ignored or not managed until it becomes a big problem.
How is it diagnosed?
Persistent pain-the kind that lasts a long time-for weeks or months, should be assessed by your doctor through both a physical assessment and a detailed discussion . Chronic pain affects all aspects of a person’s life. This is because the brain and the body are inseparable, so both are affected by pain, as well as the conditions that cause it. People who suffer from chronic pain often have fatigue and find it difficult to move around. Sometimes they are forgetful, have difficulty thinking clearly because they are distracted; or become pre-occupied by their discomfort, and find it challenging to focus on tasks at work or school. Many people with chronic pain find it difficult to exercise, eat properly, or sleep- that increases their risk for other health problems.
Chronic pain causes other conditions that make it difficult to cope- like anxiety and depression. Similarly, high stress or feelings of hopelessness increase levels of pain. So, it becomes a cycle that is difficult to break. This is why it is very important to treat the pain at 2 levels, the physical and the emotional level- and a team approach is the best way to do that.
Who should be on that team?
That depends on each person, The primary care doctor or physiatrist will help you determine which specialists you need. In general, the doctor who deals with the condition that is causing your pain, a psychologist, a pain medicine doctor, and a physical therapist or occupational therapist are important people to include in your care. If your pain affects your ability to work, then you might need a vocational specialist also.
How do you treat chronic pain?
Long term pain medications-If you choose to treat your pain with medications, you may need to take more than one medication. They can be in the form of pills, injections, creams, gels, or patches. Medications can be helpful in treating the pain, but have unwanted side effects, like nausea, sleepiness, and dry mouth or constipation. Some people need their dosage of medication increased or changed because they build up a tolerance to the drug, so they require higher doses to get the same relief as they once did on a smaller dose.
Pain management programs-are normally at “out-patient” hospital or clinic settings. Pain management programs are designed to help people who suffer from chronic pain. Pain management programs offer a variety of supports that treat the body and the emotions, like: physical therapy, occupational therapy,water therapy, physician care, psychology/counselling, relaxation, and bio-feedback. If a pain management program is not right for you, your doctor might suggest only one or two of these therapies.
Psychotherapy, often in the form of Cognitive Behavioral Therapy (CBT) is often helpful when treatments have not been successful. It is also helpful to receive CBT while undergoing other treatments. Counseling and CBT can help identify ways of coping with pain and its associated problems.
Intrathecal analgesia, or delivery of medication through a “pain pump” is often used for long term chronic pain, which cannot be managed through more conservative means. With intrathecal analgesia, pain medications and sometimes muscle relaxers can be given through a pump that is surgically implanted in the abdomen. The pump delivers medication directly into the spinal cord through a catheter. For some people, this method of pain management is successful for neck or back pain; and is advantageous because much smaller doses of medication can be used more effectively. However, it is not without risks, and your pain management doctor would be helpful in deciding if it is the right approach to manage your pain, when other treatments have not been successful.
Alternative Therapies- Alternative therapies can provide temporary relief from pain, and can be used with other pain management plans:
  • Massage Therapy
  • Water (hydro) Therapy
  • Acupuncture
  • Meditation or Feldenkreis
  • Music Therapy
  • Pet Therapy
Surgery is sometimes an option if the source of the pain is known.
Support groups can be sources of information, understanding and encouragement.


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